Driving home from school on Friday, Vinnie said,
“It must be hard being my mom. I mean, it must take a lot of
patience. How do you do it?”
My heart broke a little, hearing him say that,
and I found myself scrambling for an answer. I had to bite my tongue to keep
from saying, “Of course it’s not hard, buddy!” I really wanted to
reassure him, but both of my kids have a 6th sense for when I'm not being
sincere, and I know Vin would pick up on my hesitation. Because, let's face it, it is hard being his
mom sometimes.
(Side note: I don’t know if I’m supposed to be
bullshitting my kids on things like this, but I tend not to. I've tried a
few times and either because I'm a bad bullshitter or because they're crazy
perceptive, it doesn't go well. Instead, I try to validate their
feelings. But that's probably its own
separate post.)
In this case, I knew where the comment was
coming from. Vin had had a challenging week in school and we were in the
middle of a conversation about his school day. Things hadn’t gone well
with teachers or friends, and he was feeling badly about it.
Vinnie has a great team behind him. In
addition to well-intentioned teachers and parents, he also has a special
education liaison, special education team chair, BCBA, speech and language
pathologist, school psychologist, outside psychiatrist, outside therapist,
school district consultants, and school principal. And none of us know
what the fuck to do.
It’s hard to describe Vinnie and his challenges
to other parents. I can’t make global statements like the one above
without sounding overly dramatic. If I give examples of his behaviors,
they’re likely to respond with suggestions that feel insulting and dismissive.
Yes, of course I’ve taken away his ipad when he’s disrespectful.
Yes, of course I make chore charts and expect homework before
video games. Yes, I read with him.
Yes, there have been school meetings.
Yes, he’s in therapy. Yes, he’s on meds. Yes, I’ve tried that and that and that. You know what, just forget it. Let’s
talk about your kid.
I can’t summarize the complexities of this kid
who is the kindest, most generous, most sensitive kid I know who is at the same
time the angriest, most anxious and volatile child on his 6th grade cluster.
For a long time I was hung up on diagnosing, but
that quickly began to feel like some kind of horrible psychiatric carnival
game: pin-the-diagnosis-on-the-child. He has difficulty separating from
me and can become irrationally angry: is that borderline personality disorder?
He was fine just a second ago, now he’s a disaster: is he bipolar?
Did you HEAR that tone of voice?
He’s got to be oppositional-defiant. His social skills are
all over the map. Am I crazy to think
he’s on the spectrum? He’s picking at his skin again and refuses to write
in case he makes a mistake: maybe it’s OCD. He can’t stop obsessing over
what could go wrong: so obviously that’s anxiety. He doesn’t want to do
anything and has lost interest in things he used to love: depression. He
can’t get any schoolwork done: maybe it’s just plain ol’ ADHD. Maybe maybe maybe maybe maybe. It’s fucking exhausting, that’s what it is.
I don’t know any other parents who are living
this. Maybe they are but they aren’t talking about it. I have one friend
whose son is 18, and after years of ups and downs, finally has a diagnosis that
is giving the family some hope. I cling to her stories and pray that
someday we’ll get there, too. But for
now, I’m trying to think beyond a diagnosis because in the midst of all of this
questioning and googling, I lose sight of the wonderful boy that is Vinnie.
The one who asks me to pack extra snacks because the boy he sits next to
in math doesn’t have one. The boy who
regularly brings me coffee in bed. The
one who gets genuinely upset when he sees the cat sitting with his tail wrapped
around his feet because “he looks sad.” The boy who just could not handle
Anna describing dissecting a turtle. He
is so sweet, and so kind. He has just
the biggest heart. So I’ve decided to
try very very hard to stop asking "why" and start accepting him for
who he is moment by moment, day by day.
That’s hard, too.
Because literally moments after being sweet and
kind and lovely, he can be truly awful. If it’s a good day or a good
moment, I take a deep breath and think before I respond. If it’s not a good moment, I yell. And
no matter which kind of day it is, my inner monologue is always, “I swear to
god, I don’t know if I have the patience for this.” And I’m the most
patient person I know.
So what do we do? He falls apart and I try
to put him back together. We go to therapy every week. I talk to the
school and schedule more tests. I give him opportunities to feel good
about himself and try to focus on the positive.
And when he asks me how I find the patience to
be his mom, I respond with the truth, “I love you, buddy. I will always
love you.”